No, I
didn’t get the flu. If I had, you would have heard about it because it would
have been the worst flu ever, my suffering greater than anyone else’s. I would
be overheard moaning. “Kim,” I would say, “do you think your cancer is bad?
Well, I have the flu.” Or: “At first I was afraid that I would die. Then I was
afraid that I would not die.” No, I’m not very good at being sick.
And no, Kim
did not have the flu either. When her fever was spiking and her coughing nearly
continuous, we went to the doc to be tested. The conclusion was that Kim had
some sort of virus with flu-like symptoms. We considered going to the E.R. when
her fever hit 102, but we feared the germs in the Waiting Room, and her fever
dropped shortly after that, so we decided to ride it out. We’ve been riding out
Kim’s illness for over three weeks, now, with slow improvements but continued
fatigue, coughing, etc.
Kim’s
struggles with her non-flu have put her cancer in perspective.
Kim’s
oncologist told us that although there is no cure for stage 4 cancer, we can do
a lot to “manage” the disease. “Manage?” Here’s what Merriam-Webster says as
the primary definition of the term:
To handle or direct
with a degree of skill: such as
· to make
and keep compliant (“can’t manage their child”)
· to treat
with care (“managed his resources carefully”)
· to
exercise executive, administrative, and supervisory direction of (“manage a
business”)
To this
point she has been managing her cancer more effectively than she was able to
manage her non-flu, which pretty much knocked her on her ass despite all the water
and NyQuil. It will be good to have the non-flu gone so that all she is
struggling with is cancer, which she has been “managing” with the help of her
chemo drugs, various supplements, and her own spirit and determination.
I’m
thinking of the examples suggested in the definition above. Managing cancer is
a lot like managing a child – a very difficult child who needs to be treated
with a combination of firmness and, occasionally, a deliberate ignoring of
misbehavior. And there is also the managing of resources – treating Kim’s time
and energy with care. Managing resources does not mean all saving and no
spending. It’s spending wisely on commitments both to creative and joyful
projects such as her photography or building our cottage, and to her sustaining
and life-affirming connections with family and friends.
And the
exercise of executive, administrative, and supervisory direction of her illness
is an important part of Kim’s disease management. She keeps meticulous records
of her meds and her appointments, adjusting them as needed. As I write this she
is looking over the results of her last round of blood tests. If cancer, at its
core, is an uncontrolled proliferation of cells, then Kim fights back by exerting
as much control as she can: managing her illness.
The goal,
of course, is to die healthy. Lots of ways to define “healthy,” and I think
most definitions apply to us.
Dave, much wisdom here, as usual. If only we all could somehow internalize what you are learning…
ReplyDeleteThere are some nasty bugs going around. Hope Kim's non flu symptoms disappear! I think you both are doing an outstanding job managing your daily lives.
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